WORLD SICKLE CELL DAY 2020
#WorldSickleCellDay
As part of activities lined up to mark the 2020 World Sickle Cell Day, Sickle Cell Foundation Nigeria is presenting the RECORDING OF THE RECENTLY HELD WEBINAR TITLED “SICKLE CELL DISEASE -THE NEW FRONTIER” on SOCIAL MEDIA PLATFORMS.
This will afford those of us who were unable to join the webinar the opportunity of accessing the vital information shared by world-renowned experts.
To this end, please find below details for the Premier of the recording:
FOR WHOM:
For Patients, Parents, Families, Support Groups, Sickle Cell NGOs, Sickle Cell Experts and ALL interested in the Sickle Cell cause.
SCHEDULE/TIMES:
The webinar is scheduled for 3 days so that we can watch at our own preferred time:
1) On FaceBook Live and YouTube Live:
i) Wednesday June 3rd 2020 – at 4:30 pm Nigeria time (3:30pm GMT)
ii) Thursday June 4th 2020 –7:30pm Nigerian time (6:30 pm GMT)
iii) Monday June 8th 2020 – 1:00am Nigerian time (2 am GMT)
QUALITY:
You will be pleased to know that the recording is of excellent quality and the viewing experience would be worthwhile.
LINKS:
i) FaceBook Live Page is: *https://www.facebook.com/
ii) YouTube via
“Putting Rare Diseases Patients First!(R) YouTube Channel”
POST WEBINAR SURVEY:
If you are able to see the complete Webinar, please take the Post Webinar Survey via the link below:
RESEARCH SURVEY:
Also, please take the following Research Survey.
It is an ongoing Research Survey. This research survey will enable us to advocate on behalf of patients and parents to policy makers, pharmaceutical companies, and regulatory authorities. We will be publishing the research and you will receive the paper at that time. Please click on the link below and take the research survey. It will only take you 10 minutes. It will help us to ensure our persons living with Sickle Cell are included in this global Research Survey.
Copy the link into a browser such as Google Chrome, or just click on the link to be taken to the survey.
Thank you.
Sickle Cell Foundation Nigeria.
