Nigeria will join the global community to commemorate World Sickle Cell Day on June 19th – as designated by the United Nations; this is a day set aside to remember those among us with sickle cell – particularly the children. continue reading →
Leg ulcer in Sickle Cell Disorder
LEG ULCER IN SICKLE CELL DISORDER
Leg ulcers are one of the most debilitating and stigmatizing complications of sickle cell disorder occurring in one ankle or both and can remain unhealed for several years. They are very painful, render the patients incapacitated, sometimes confined indoors and preclude them from leading normal, productive lives. continue reading →
Art Therapy for Chronic Illness
Art Therapy for Chronic Illness
Sickle Cell Disorder is a chronic illness. When a person is diagnosed with illness, the health worker’s first instinct is to focus on the physical health and alleviate the pain. But in addition to the physical health, they should also keep in mind that these individuals also suffer emotionally. continue reading →
STROKE IN SICKLE CELL DISORDER
Stroke does occur in children! Stroke is one of the causes of severe disability and mortality among children with sickle cell and cause of sorrow in their families. continue reading →
Bone Marrow Transplantation as a Cure for Sickle Cell Disorder
This discussion is addressing Bone Marrow Transplantation (BMT) because we have been receiving a flood of inquiries about CURE FOR SICKLE CELL. At present, the cure there is for sickle cell is Bone Marrow Transplantation (BMT). This provides information you may wish to know about BMT.
Please feel free to send in any further questions and comments.
#CureForSickleCell
QUESTION: Is there a CURE for SICKLE CELL ANAEMIA (Haemoglobin SS)?
ANSWER: YES, there is a cure for sickle cell in the form of Bone Marrow Transplantation (BMT). BMT for sickle cell has been around since the late 1980’s – although still not widely available. continue reading →
Cookie Jar For Sickle Cell (Cupcakes)
Sickle Cell Foundation Nigeria has partnered with Cookie Jar a confectionery in Lekki, Lagos Nigeria. The aim is to raise funds to take care of children affected with sickle cell disorder. Whenever a cupcake is sold, a proportion will go towards the drugs/treatment for the children affected with sickle cell. continue reading →
Screenings of epic movie “DAZZLING MIRAGE”
In commemorating the 2015 World Sickle Cell Day, the Sickle Cell Foundation Nigeria, in collaboration with Channels TV, Silverbird Group and Mainframe Productions, is organizing FREE SCREENING of the epic movie – “DAZZLING MIRAGE” in LAGOS and ABUJA. This is a different, more creative means of raising awareness and educating people about sickle cell disorder – what better way to educate people than through story telling.
2015 WORLD SICKLE CELL DAY – Upcoming Events
Nigeria once again joins the rest of the world in celebrating World Sickle Cell Day on June 19th 2015. In commemorating the day this year, the Sickle Cell Foundation Nigeria (SCFN) has selected the theme “SICKLE CELL DISORDER: LIFE-SAVING MEASURES” – drawing attention to Sickle Cell Disorders (SCD) and to life-saving services available to affected persons. Most of these services are offered by the foundation at the National Sickle Cell Centre. continue reading →
Prenatal Diagnosis
What, Where and When
This is a test that can be done on the baby before it is born to see whether it is affected by a particular disease or not. If it is affected, the couple may decide to terminate the pregnancy and try again for an unaffected child or may choose to continue with the pregnancy and prepare their minds for its birth. If the baby is not affected, then the pregnancy can continue normally.
Remember that, for most couples at risk for sickle cell anaemia (e.g. AS x AS) there is a 3 out of 4 chance of a healthy child in each pregnancy continue normally after the test. continue reading →