Nigeria will join the global community to commemorate World Sickle Cell Day on June 19th – as designated by the United Nations; this is a day set aside to remember those among us with sickle cell – particularly the children. continue reading →
LEG ULCER IN SICKLE CELL DISORDER
Leg ulcers are one of the most debilitating and stigmatizing complications of sickle cell disorder occurring in one ankle or both and can remain unhealed for several years. They are very painful, render the patients incapacitated, sometimes confined indoors and preclude them from leading normal, productive lives. continue reading →
Art Therapy for Chronic Illness
Sickle Cell Disorder is a chronic illness. When a person is diagnosed with illness, the health worker’s first instinct is to focus on the physical health and alleviate the pain. But in addition to the physical health, they should also keep in mind that these individuals also suffer emotionally. continue reading →
Stroke does occur in children! Stroke is one of the causes of severe disability and mortality among children with sickle cell and cause of sorrow in their families. continue reading →
This discussion is addressing Bone Marrow Transplantation (BMT) because we have been receiving a flood of inquiries about CURE FOR SICKLE CELL. At present, the cure there is for sickle cell is Bone Marrow Transplantation (BMT). This provides information you may wish to know about BMT.
Please feel free to send in any further questions and comments.
QUESTION: Is there a CURE for SICKLE CELL ANAEMIA (Haemoglobin SS)?
ANSWER: YES, there is a cure for sickle cell in the form of Bone Marrow Transplantation (BMT). BMT for sickle cell has been around since the late 1980’s – although still not widely available. continue reading →
In commemorating the 2015 World Sickle Cell Day, the Sickle Cell Foundation Nigeria, in collaboration with Channels TV, Silverbird Group and Mainframe Productions, is organizing FREE SCREENING of the epic movie – “DAZZLING MIRAGE” in LAGOS and ABUJA. This is a different, more creative means of raising awareness and educating people about sickle cell disorder – what better way to educate people than through story telling.
Nigeria once again joins the rest of the world in celebrating World Sickle Cell Day on June 19th 2015. In commemorating the day this year, the Sickle Cell Foundation Nigeria (SCFN) has selected the theme “SICKLE CELL DISORDER: LIFE-SAVING MEASURES” – drawing attention to Sickle Cell Disorders (SCD) and to life-saving services available to affected persons. Most of these services are offered by the foundation at the National Sickle Cell Centre. continue reading →
Prenatal diagnosis for Sickle Cell Disorder
This is a test that can be done on the baby before it is born to see whether it is affected by sickle cell disorder or not. Nowadays, the best way to examine the material from the baby is by analysing the haemoglobin genes. This is called “DNA analysis”. Using this method, it is possible to detect the genes for haemoglobin A and haemoglobin S in the material from the baby’s developing placenta. This procedure is called Chorionic Villus Sampling (CVS).
Remember that, for most couples at risk for sickle cell anaemia (e.g. AS x AS) there is a 3 out of 4 chance of a healthy child in each pregnancy.
Chorionic Villus Sampling (CVS)
CVS can be done early in pregnancy between 11 and 13 weeks. If you are interested in the procedure, you will have to get in touch with us when your pregnancy is around 7 – 8 weeks (confirmed by ultrasound scan) to make a booking. CVS is performed by a trained Obstetrician using the trans-abdominal route under ultrasound guidance. Local anaesthesia is applied before sampling to reduce pain during the procedure. Clients can get up and leave a few minutes after the sample is obtained. However, they should avoid strenuous activities and sexual intercourse for a few days afterwards to minimize risk of miscarriage.
How the CVS is tested
DNA from the chorionic villi is studied to see if the baby’s genes for haemoglobin are normal, or if an alteration has been passed on from the parents. It takes about 3 days to get the result of prenatal diagnosis.
Is The DNA Test Accurate?
DNA analysis is the best method for diagnosing inherited disorders. However, in every medical test, there is a small possibility of an error in diagnosis. The chance of a mistake is less than 1 in 200 (0.5%).
Is CVS Safe?
There is practically no risk to the mother. The main risk is that the test could cause a miscarriage. We do the test as gently and expertly as possible, but anything that interferes with a pregnancy can cause a miscarriage. At the moment, the risk of miscarriage after CVS during the first 12 weeks seems to be around 1 in 50 (2%). However, it is difficult to give an exact figure because other factors may influence the risk of miscarriage after the procedure. When a miscarriage does occur, it can be difficult to tell whether it was due to the test or not, because many miscarriages happen naturally at around 12 weeks of pregnancy without any interference.
When Was Prenatal Diagnosis Introduced To Nigeria?
Prenatal diagnosis was introduced to Nigeria in November 1993 through an initiative of the Sickle Cell Club of Lagos Nigeria and the collaboration of the British Council, the department of Obstetrics and Gynaecology of Lagos University Teaching Hospital, Idi-Araba and the Nigerian Institute of Medical Research, Yaba.
What the client should expect
Reception and Counselling
Our receptionist at the National Sickle Cell Centre will make an appointment for the couple to meet our trained Sickle Cell Counsellor who will note the date of the last menstrual period, the obstetric and medical history and ensure that they understand all the relevant information.
The blood of the prospective parents – both the man and woman – will be drawn in the laboratory for some preliminary tests and the woman will be given a date for meeting the Obstetrician who will perform an ultrasound scan and perform the CVS sampling.
For further information, please contact:
Sickle Cell Foundation Nigeria
National Sickle Cell Centre,
Opp Lagos University Teaching Hospital(LUTH),
Ishaga Road, Idi-Araba, Surulere,
P.O Box 3463, Surulere, Lagos
+234-803 584 6666
+234-810 000 2001
+234-810 000 2003